When SMA symptoms like muscle weakness leave her feeling like a Muppet, columnist Connie Chandler depends on the strength of her community.

Adrian R. Krainer has been awarded the 2025 Heinrich Wieland Prize for his pioneering RNA research that led to the development of Spinraza.

Al Freedman, PhD, reflects on end-of-life talks with Michael Morale and the SMA legacy he leaves behind at Cure SMA 2025.

A new ASAH1 mutation linked to SMA with progressive myoclonic epilepsy was found in a young boy, offering insights for genetic counseling.

Richard Kravitz, MD, shares why self-advocacy matters in healthcare and how to ask questions with confidence, clarity, and compassion.

Columnist Helen Baldwin says she's come to appreciate the people she's met in the community years after her son's SMA diagnosis.

For columnist Connie Chandler, finding a community filled with love, admiration, and support has made all the difference in life with SMA.

Learn how SMA affects liver health, key risk factors, symptoms, and practical tips to manage and prevent liver complications in SMA patients.

Molecular markers in cerebrospinal fluid may help predict if people with SMA type 2 or type 3 will respond to treatment with Spinraza.

Comparing myself with other members of the community. Feeling like a failure because I haven’t accomplished half of what my peers have. When I’m home, embroiled in the mundanity of my everyday life, I ...

While muscle relaxants can be a valuable tool in managing the pain, discomfort, and spasms associated with spinal muscular atrophy (SMA), the combination of SMA and muscle relaxants in the summer may ...